For so many years I never fully accepted, let alone viewed the image of me staring from the mirror positively. I purposely refused to be in pictures, and selfies, physically cringing at the thought of how I would look like. I lived each day filled with a hidden dread that all of my flaws would be placed under a microscope and then displayed. I socially distanced myself choosing to only accept invitations from those whom I trusted because I was tired of endless disappointments and tears.
From a young age I realized that there was no one similar to me, in my family, in my friend group, in school and in my immediate community. As an avid reader, I did not find books about people like me. Going out in public was a nightmare as each stare would penetrate deep into my core, closing my heart. During recess and P.E, classes I sat on the sidelines fighting back tears as I longed to be included in every exercise, and fun activity.
The only two accommodations I asked for were to be released from classes five minutes before the end so I could make it fairly on time for the next class and to release me from the required P.E. classes and receive the needed to graduate. While attending University I made sure that my dorm room was always on the first floor, a routine which continued as I pursued my two masters degrees.
When I began my teaching career, I was instantly struck by the harsh reality that my physical disability defined me negatively. I had to constantly prove myself and my abilities so that I could secure the job that I wanted. Not driving a car only exacerbated my isolation and my self-esteem dwindled. Surprisingly, the only job offered to me was in a special education functional skills class for emotionally challenged adolescents as they were the only school that looked beyond my disability. I then embarked on a successful career within the international school system and taught in Moscow Russia, London England culminating in Helsinki Finland.
All the while I selflessly advocated for my students to be included in all classes and fought antiquated systems designed to hold them back. I learned through practice and persistence to look for allies who felt the same and it was with them that I engaged in co-teaching and planning.
One would think that this would enable me to envision and experience a better life for myself.. but this took time, great resilience and the support of true friends who embraced me before I could.
I was scrolling on social media, about 3 years ago today and came across a post highlighting the disability Pride flag. This immediately sparked my interest as I had never seen or heard about this before, let alone imagine this. So I began to explore this unknown world with sudden excitement that surprised me to the point that I felt tingles down my spine, goosebumps, and I swore that my ridged sore toes were dancing.
Below is a summary of what I uncovered:
“Ann Magill, a writer with cerebral palsy, was in grad school when ADA became law in July 1990…found she had a knack for flagging injustices, She visualized making a disability pride flag and, finally, was fiercely motivated to do so following a horrific attack on a disabled-serving facility in Japan in 2016. The first pride flag is pictured below along with a description.
Here’s what the disability pride flag represents:
The disability pride flag started to go viral in 2019 and was then readjusted after the zig zagged lines were not accessibly friendly for those suffering from migraines or seizures when viewed on computers. Thus, in 2021, Magill unveiled an updated and more accessible design of the disability pride flag featuring muted hues and softer angles. Additionally, Magill waived copyright and entered this disability pride flag into the public domain in an effort to encourage everyone – with and without disabilities — to promote and use the symbolic design.
After viewing this flag and resonating with the story behind it I felt as if I finally belonged. I embraced my disability identity with such pride and power as if all of my yeTars of struggle were worth it. My voice could be heard, and what a beautiful sound it was to speak out, share my story and support others who were unsure, afraid or unaware like me. So now when I was asked to write a blog about, “What Disability Pride Means to Me?!’ I eagerly share this poem which encapsulates all of my feelings, thoughts and words.
MY PRIDE
——–
Waving high with pride
More than colors on black cloth
A symbol of hope
Love, Strength, Belonging for all
Honoring our Identity
Nicole Demos
(She/Her/Disabled)
Helsinki, July 2025
References
Ann Magill, CC0, via Wikimedia Commons
https://upload.wikimedia.org/wikipedia/commons/4/4b/Visually_Safe_Disability_Pride_Flag.png
Ann Magill, CC0, via Wikimedia Commons
https://www.ameridisability.com/heres-what-the-disability-pride-flag-represents/